My poor Bean has been in so much pain lately. I just don't know what to do for her. She is her own worst enemy of course. Seeing as how she is an active five year old she isn't exactly doing anything to help herself out but what am I supposed to do? FORCE her to lay down and rest her body?? How on Earth would I even do that? It has been at least 2 maybe 3 weeks now that she is walking funny. Complaining ALOT. She can't sit in a chair. She does this weird squat thing. Doesn't look comfy to me but hey it works for her. I can't get her to keep shoes on her feet. We keep buying different ones hoping we will find a pair that feels good. So far the only thing that feels good is bare feet. Socks are usually off too. Fine at home but out in public we get some looks ya know? Plus who knows what she is walking on. *shudder* She is complaining of pain in odd places. She has the normal leg and feet complaints but now she also has chest and eyebrow pain. Huh? What the heck does THAT mean?? Again...she is only five so getting her to articulate these pains is nearly impossible. Is it an ache or a burn? A sharp pain? Where exactly is it? Is it your heart? Lungs? Ribs? Breast bone? What do you mean your eyebrow? Is it your eye? HOW does it hurt? ARGH!! I called our regular family doctor so I could check in with her to see what she thinks about how Jenna is doing. May 19th!! That is the soonest she can see her. *sigh* Yeah I CAN call her rheumatologist but I am just not sure that he is doing all he can for Jenna. So DO I call him? I just don't know. All I know is that we have not tamed this beast sufficiently. Instead of showing signs of improvement she is getting worse. She didn't even want to go to school today. Jenna LOVES school. LOVES it. Loves her teacher, loves all her friends and the activities. Plus the playground is accessible now that all the snow finally melted. She LOOOOOves the playground. She clung to me wanting to stay home. I hugged and kissed her, pried her off my arm and sent her away with Daddy. Did I do the right thing? I just don't know. She is also SO tired. Is it the meds? The disease itself? Is it a disease? Or a condition? Anyway....I am attaching a photo taken last night. Her knees look awful to me but what do I know?