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Totties Pretties on Etsy

Totties Pretties on Etsy
Tottie's Pretties are ribbon wrapped headbands adorned with flowers & gems or perfect boutique bows. Banding Girls Together to Find a Cure for Childhood Arthritis. Tottie's supports CARRA and the Arthritis Foundation.

Thursday, April 2, 2009

We Got to See Dr. Pirone Yesterday :)

Dr. Pirone is the first optometrist that saw Jenna and diagnosed her with Anterior Uveitis. We LOVE her. She has rheumatoid arthritis herself so she is very knowledgeable of the disease as well as so compassionate. She is so kind and gentle with Jenna. When the cells continued to multiply at a rapid rate that is when she recommended we see an opthamologist because it was beyond what she could help us with. Now that Dr. Foster has gotten the Uveitis under control we can do follow ups with Dr. Pirone. YAY!
So it was a good appointment. Still all clear! No pressure check. *sigh* She is still so freaked out by that. I don't know what we are going to do to get them checked. BUT...she said everything looks good for now. We know what to look for and if we start to see signs we will bring her right in.
A friend of ours that has a son with JRA and Uveitis had their routine 8 week follow up with Dr. Foster yesterday. Unfortunately for them it was not good news. His eyes have been quiet and off drops since last July with good pressure readings. All good right? Apparently no. He has developed a cataract in his left eye. A very big wake up call for all of us. It was our understanding that cataracts was caused by extended use of drops and or high pressures. It seems as though the damage left behind by Uveitis can cause cataracts as well. So please add our friend Jake to your prayers. We would appreciate it.
On another note...Jennas joints are already starting to swell and ache again. Not good but we are watching closely. We were really hoping for this latest MTX increase to last longer than this! Only worked for about a month. COULD be the lousy, cold, damp weather we have been having. I don't know. Time will tell.
As always...thanks for reading!

1 comment:

S and S said...

We're still praying for Jenna and your family and we'll add Jake to the list.