tag:blogger.com,1999:blog-4610416690314330157.post4855561443970441933..comments2023-10-29T05:48:33.771-07:00Comments on Jennas JIA & Uveitis: She is in so Much PainAmy Cunninghamhttp://www.blogger.com/profile/03415639964305589674noreply@blogger.comBlogger9125tag:blogger.com,1999:blog-4610416690314330157.post-25001960155767633752009-04-15T15:51:00.000-07:002009-04-15T15:51:00.000-07:00Hi, I found your blog from Jacob's JRA and Uveitis...Hi, I found your blog from Jacob's JRA and Uveitis Journey blog. My name is Kristin, and my little boy has JRA/Uveitis as well...you are welcome to look at our blog anytime. It's listed on Jacob's blog under Parker's JRA/Uveitis fight. It's been nice finding these blogs. It helps Parker to see that he's not alone and other kids have to take meds/get shots, too. Glad you have a blog about it! Thanks!Kristinhttps://www.blogger.com/profile/03761990722261014291noreply@blogger.comtag:blogger.com,1999:blog-4610416690314330157.post-62505965618730949072009-04-14T09:20:00.000-07:002009-04-14T09:20:00.000-07:00Lesli...Jennas second favorite shoes ( crocs being...Lesli...Jennas second favorite shoes ( crocs being the first ) are her "furry boots". We have not yet invested in the real Uggs for her but we search for really good quality imitations. She wears them with no socks as she loves the way the fur feels on her skin :o) I think next Fall we will get her the real deal. Even in the Summer she is typically barefoot! She walks across hot pavement like it is nothing...I don't know maybe the heat feels good to her. As far as getting her in to her doctor...I am keeping a VERY vigilant eye on her. She is doing good for the moment...watching VERY closely.Amy Cunninghamhttps://www.blogger.com/profile/03415639964305589674noreply@blogger.comtag:blogger.com,1999:blog-4610416690314330157.post-10470082738112530722009-04-13T21:58:00.000-07:002009-04-13T21:58:00.000-07:00I know what you mean about the whole shoe ordeal!!...I know what you mean about the whole shoe ordeal!! My daughter complains all the time about her feet hurting her. We have bought so many shoes and the only thing we have found that doesn't seem to hurt her are ugg boots. I know they are expensive but I guess you will do anything to see your baby NOT in pain. She wears them EVERYWHERE.. I dont know what we will do this summer?? I am with Cindy.. I can't believe your Dr would not see her any earlier esp with her arthritis.. seems long to me.. also, I felt the same way about our first PR so we changed and are happier now...its crazy how some PR treat very aggressively and some are more laid back and less aggressive. Just be persistent!! I hope things get better!Leslihttps://www.blogger.com/profile/11652365701516479512noreply@blogger.comtag:blogger.com,1999:blog-4610416690314330157.post-19585420638130357592009-04-09T13:37:00.000-07:002009-04-09T13:37:00.000-07:00p.s. I am a friend of Erika's. i.e. Charlotte's b...p.s. <BR/><BR/>I am a friend of Erika's. i.e. Charlotte's blog. She can vouch that I am not some nut case. Erika is in our support group here in Oregon. She lives on the border of WA and OR.Cindy Pricehttps://www.blogger.com/profile/09063379976044976773noreply@blogger.comtag:blogger.com,1999:blog-4610416690314330157.post-22424650034223911552009-04-09T13:30:00.000-07:002009-04-09T13:30:00.000-07:00No, I don't have a blog. I am not that high tech. ...No, I don't have a blog. I am not that high tech. Email is bc.price@comcast.net.<BR/>If it is moving around that can be a good thing. When it settles into one joint, it can do damage that way. Also, when your daughter gets sick, it will tweak the arthritis. Her arthritis will be active before, during, and a little after the illness. Don't freak out. Be patient and let her immune system calm down. Kids with jra will also fatigue much easier. Our daughter has systemic jra. <BR/>Go with your gut on the doctor. You know your daughter the best. Email me and we can chat more.Cindy Pricehttps://www.blogger.com/profile/09063379976044976773noreply@blogger.comtag:blogger.com,1999:blog-4610416690314330157.post-68523794645688957792009-04-09T08:04:00.000-07:002009-04-09T08:04:00.000-07:00Hey Cindy..nice to "meet" you. Is your blog linked...Hey Cindy..nice to "meet" you. Is your blog linked on either Jacob or Charlottes blog? I would love to read yours. Wow ten years...you must be an expert by now! Jenna was just diagnosed last Summer so we are still green and clueless. I also just do NOT feel that she is being treated properly. It seems as though she should be getting more relief. She is NOT functioning as a normal five year old. Very sad. But...on a good note...today she feels GREAT! It's remarkable the difference from yesterday to today. I was told this morning by Jacobs Mom that that is basically the nature of the beast. So now we wait for it to come back.Amy Cunninghamhttps://www.blogger.com/profile/03415639964305589674noreply@blogger.comtag:blogger.com,1999:blog-4610416690314330157.post-75113963473439607102009-04-08T20:04:00.000-07:002009-04-08T20:04:00.000-07:00I have been reading your blog from Jacob's blog in...I have been reading your blog from Jacob's blog in Boston, via Charlotte's blog in Washington. I run a support group in Oregon for Jra. Man, waiting until mid May to be seen by your family practitioner is nuts. Your child should be a normal 5 year old. That's the goal. When it settles in to one joint for long with our daughter, I schedule an injection. Go with your gut. You are the momma and you know her best. If you want, I can send you my email to correspond further. We are in our tenth year with the disease. Hang in there. CindyCindy Pricehttps://www.blogger.com/profile/09063379976044976773noreply@blogger.comtag:blogger.com,1999:blog-4610416690314330157.post-17730372439517329912009-04-08T16:30:00.000-07:002009-04-08T16:30:00.000-07:00She DOES have crocs. So far they are the best for ...She DOES have crocs. So far they are the best for her but even those are bothering her lately. She has the regular summer ones and she also has the fleece lined winter ones. Has to be the croc brand though not fake ones.Amy Cunninghamhttps://www.blogger.com/profile/03415639964305589674noreply@blogger.comtag:blogger.com,1999:blog-4610416690314330157.post-14002533265162119222009-04-08T15:12:00.000-07:002009-04-08T15:12:00.000-07:00Have you tried real crocs? They sell them at Lamey...Have you tried real crocs? They sell them at Lamey Wellahams. I know they're going out of style, but the help with pain. My mom could hardly walk and she loved her crocs. My sister has an unknown immune disease, arthritis and fibro and her crocs are comfy for her too. They make ones without holes too, so they can be worn on rainy and snowy days.Samanthahttps://www.blogger.com/profile/00304149237394998788noreply@blogger.com