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Totties Pretties on Etsy

Totties Pretties on Etsy
Tottie's Pretties are ribbon wrapped headbands adorned with flowers & gems or perfect boutique bows. Banding Girls Together to Find a Cure for Childhood Arthritis. Tottie's supports CARRA and the Arthritis Foundation.

Friday, December 5, 2008

OH What a Day!

SO.......last Sunday Jenna saw Dr. Pirone because she was complaining of alot of blurriness and pain. Dr. Pirone said her cells were about the same. No better but no worse either. She couldn't see any real reason for sudden blurred vision. We tried again to get Jenna to let them check her pressures but she wouldn't do it. I am still very new at this so I had NO idea the importance of this. We went back today for a follow up with Dr. Pirone. She felt there was a SLIGHT reduction in cells but hey ANY reduction is good right? This time with ALOT of bribery Jenna let them test her pressures. Uh oh. I guess we should have pushed the issue sooner. Left eye 46 right eye 35. Dr. Pirone said "normal" is 20 or lower so she was VERY concerned. She had three of the office ladies calling the local specialists to find someone to see her IMMEDIATELY. Okay...okay....don't panic Amy. You can do this. Yeah right. They finally find someone willing to see her and he says send her over right now. Oh my God the kid would NOT comply. Can't say as I blame her. I'd be kinda freaked out too and I'm 34! My Mother and I kept telling her that if she doesn't let the doctors help her she can go blind. Her whole world could go black. She didn't want that but also didn't want them coming near her. LORD...... give me strength. Dr. Moore was SO kind and patient with her. He normally doesn't even see kids so what a blessing. She FINALLY gives in and lets him check her pressures with a Tono something or other? MUCH better reading. Still 35 right but now 24 left. No imminent danger. He told us that we are doing the right thing going to Dr. Foster. He says this will be a lifelong battle BUT with a good prognosis. He has added another drop. This one to manage the pressure until next Thursday when HOPEFULLY we head down to Cambridge to see Dr. Foster. There is something/someone that may prevent us going but God willing things WILL work out. I am so tired I think I could sleep for a week.

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