This is the story of Jenna (AKA Bean). Diagnosed at four years old with Juvenile Idiopathic Arthritis and Uveitis. This is her journey....
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Tuesday, November 25, 2008
I am sooooo confused....
So we got good, bad and confusing news today. Good news.....her platelet count is fine. Nothing out of the ordinary. Confusing news.....Dr.Daihke never called Dr. Kenney about her labs from last week. Hmmmm.......Dr. Kenneys office seemed to think so. So I took her to the lab today for nothing. Bad news.......Dr. Daihke doesn't want Jenna to cheer right now. Oh man she is gonna be upset. He said that until he can get this flare under control he doesn't think it's a good idea. Now this surprises me since all along he has said to let her do whatever physical activity she wants to. He felt the more the better. I guess he is concerned(as are we)that we can't seem to find a medication that will work for her. Cheering is supposed to start tomorrow.....how long do you think I can put off telling her?
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2 comments:
Jacob's doctor always said to let him do what he wants. Even when his knee was a mess he said he could do basketball if he wanted too. Why is the doctor telling you now to not let her cheer? I would think if she was having a bad day then she could sit out that day. If she isn't in obvious pain why not let her keep mobile? If your daughter is like my son he is bouncing off the walls ALL the time. It is not like he is going to sit on the couch and rest. So what is the difference if the kids are running around their own house or in a gym? Talk to the doctor again. Maybe you can compromise. With JRA the child can change from day to day with the illness. Just my thoughts!
I would let her do it :)
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