Friday, July 29, 2011
Just a Friendly PSA
Unfortunately there have been some rather disturbing events this week in my online community of support. When Jenna was first diagnosed 3 years ago I felt COMPLETELY alone. The one thing I managed to find online while searching was a blog written by another Mom. It felt really good to know that there was indeed someone else out there. She and I emailed, texted, phoned, even met up at a doctors appointment. Somewhere along the way I started this blog. It became a source for me to vent through, keep track of Jenna's health (or lack there of) as well as a way to meet others going through the same thing. From this group of blogger Moms we also became a community on Facebook, first as Facebook "friends" and then into a large PRIVATE group. You think private, you think safe right? WRONG, oh, so, WRONG. Let me give you a real easy tip. If it SEEMS incredulous, that's simply because it is. Do not believe everything that you read. EVER. Do your own homework. Want tips? I can let you know some but I won't post them here. You want to be very wary of who you meet online, I mean yes we all know that, but even folks that seem okay, that seem to be going through the same things you are, REALLY check them out before hand. Also, protect yourself. Did you know that there are sick people stealing pictures off of blogs of sick kids to create fake blogs of fake kids of fake families to garner attention, sympathy, gifts and money?? Yep, true enough. Get enough angry Moms together and we can get to the bottom of something fishy. Again, want tips, I can let you know, but not here and you had better believe that I will thoroughly research you before I tell you anything. Due to recent events, many Moms have decided to make their blogs private. I won't be doing that. Finding a blog was my lifeline when we bean this journey. If there is even a CHANCE that I can be that lifeline, then I will keep this public.