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Totties Pretties on Etsy

Totties Pretties on Etsy
Tottie's Pretties are ribbon wrapped headbands adorned with flowers & gems or perfect boutique bows. Banding Girls Together to Find a Cure for Childhood Arthritis. Tottie's supports CARRA and the Arthritis Foundation.

Wednesday, June 8, 2011


Really it's a crummy thing anyway when you think about it. Though it's something that we are supposed to benefit from, it's still crummy. Who says, "Oh YAY! Surgery!!"? No one.

So anyway, today was Beanz surgery to place tubes in both ears and remove her adenoids in the hopes that we can drain the fluid and stop the infections. Hey guess what? My kids was difficult. I know, right? You can't even believe it. True story. Ears were first on the agenda. That's where all the trouble started. Her ear canals are oddly shaped. Go figure. The odd shape made it difficult, impossible really, for the doctor to get to her eardrum. SO, he accidentally "scratched" her ear canal. AND, the tube is in, but not in an ideal location. Therefore, it likely will not function properly, will need to come out sooner, and will cause some hearing loss while in place. And this is just the right side. Left wasn't QUITE as bad, but non the less proved difficult and the tube is again, not in the ideal location.

Next up was her adenoidectomy. Was pretty routine, until he couldn't get the bleeding under control. He said we are not talking significant blood loss, but substantially more than normal, more than she should have bled. He feels she must have had some residual meds still in her system. It was my understanding that it was just the Motrin that would cause issues with bleeding. BUT, I read this today in the Humira patient info: Blood problems. Symptoms include a fever that does not go away, bruising or bleeding very easily, or looking very pale.
Fabulous, right? Her rheum had said that if everything went well that she could resume her meds as usual this Friday. I don't think any of this qualifies as going well. I'll be calling them tomorrow.

She then had issues coming out of the anesthesia. Some of it was normal, disorientation, fighting with all of us to get up and leave. Then there was the issue of her forgetting to breathe. Yuh. In AND out Jenna!! She needed to be put back on oxygen which freaked her out and got her all wound up again. Anyway, once we got her calmed down AGAIN and breathing on her own, we were discharged.

It has been a LONG day. She is in a lot of pain. She is fearful of MORE pain. She is tired and cranky. She is miserable and out of sorts. BOO.

I was going to post some pics but for some reason they all wanted to lay on their side. SO, in lieu of photos I am sharing a song/video. I saw many things today from friends about praising Him, in the storm or the darkness as well as in the light, in the good times. He is in ALL of it. His glory is ours to have. I praise Him, even after the day we have had.

1 comment:

Jenna said...

Hi Jenna and Famil,
To One Jenna From another: Of course my name is Jenna too. Jenna u are an amazing, courageous, strong and determined fighter. You are a Precious and Special Brave Warrior, You are Beautiful Smilen Champ, and an Inspirational hero. I was born with a rare life threatening, debilatating and degenerative bone disease. It is very painful and effects all of my joints. i also have Arthritis, Fibromyalgia, Tendonitis an Burcitis. I love it when people sign my guestbook.