Parents of "normal", "healthy" kids just don't seem to really get it. When your kid is sick and running a fever, yes it's scary, yes it sucks, yes it's sad. All that and much more. When a child with a medically suppressed immune system gets sick it is down right frightening, frustrating, maddening, stressful, I can't even begin to find all the words I need to express how I am feeling. Jenna, along with SO many kids just like her, is on some heavy duty meds. I really don't even understand them or how they work. One of the meds she is on is a chemotherapy drug. Yup...used to treat cancer. Her dosage of that was recently doubled and switched from oral consumption to a sub cutaneous injection. That scares the He!! out of me.
Since before Christmas she has had this nagging cough. Nothing major. Just a nuisance that wouldn't go away. This past Monday I kept her home from school because the cough had a new friend. A headache. So we went to the peds office. Couldn't find anything obvious. At that point she didn't even have a fever. Even though there was nothing obvious she was put on three days of Zithromax to try to battle whatever was ailing her. That night the fever started. It has been all over the place. As high as 104. As low as 99.2. Is it influenza? Beats me but even if it is I know there is nothing that can be done other than fluids, rest and Motrin. So that's what we have been doing ALL week. She hasn't been to school since Friday January 8th. From Thursday afternoon through Friday late morning she was fever free, headache free. Just still that stupid cough. So, I thought maybe she was coming out of whatever she had. It was SO beautiful here yesterday. I thought some fresh air and sunshine was in order for us. Off to the park we went. How harmful can that be? We were there about 30 minutes and she suddenly looked awful. Completely wiped out. Headache was back as well as a tummy ache. *sigh* I was hoping she was just on the swings to long? No such luck. Got her home, took her temp. Son of a gun it's back. Nothing major. Just been hovering right around 100. But still. It's there. I really don't think she has any kind of major illness going on. It's just that with the meds she's on she can't fight off whatever it is she does have. But stopping the meds means her eyes and joints get worse. We can't win. What am I supposed to do for her?
Well I don't know how cathartic that was but it's out there now.