tag:blogger.com,1999:blog-4610416690314330157.comments2023-10-29T05:48:33.771-07:00Jennas JIA & UveitisAmy Cunninghamhttp://www.blogger.com/profile/03415639964305589674noreply@blogger.comBlogger225125tag:blogger.com,1999:blog-4610416690314330157.post-28479041581897662322020-05-28T01:04:54.868-07:002020-05-28T01:04:54.868-07:00Hello!
I would like to ask something. What are go...Hello!<br /><br />I would like to ask something. What are good <a href="https://www.aroniaberry.ca" rel="nofollow">chokeberry aronia</a> recipes?<br /><br />Thanks!<br />Anthony<br />Anthony Del Rosariohttps://www.blogger.com/profile/13531490688908126398noreply@blogger.comtag:blogger.com,1999:blog-4610416690314330157.post-40097580824332837932019-09-19T04:19:32.207-07:002019-09-19T04:19:32.207-07:00Thank you for sharing nice article good informatio...Thank you for sharing nice article good information <br />About arthritis very useful<br /><a title="Best homeopathy doctor near me" href="https://mastershomeopathy.net/book-appointment-online-masters-homeopathy-hospital/" rel="nofollow">Best homeopathy doctor near me</a><br />Masters Homeopathyhttps://www.blogger.com/profile/02302703264004367572noreply@blogger.comtag:blogger.com,1999:blog-4610416690314330157.post-3554175692602568382018-08-09T00:33:56.294-07:002018-08-09T00:33:56.294-07:00Thanks for sharing Good Information
arthritisThanks for sharing Good Information<br /><a href="http://www.drcarehomeopathy.com/diseases/arthritis/" rel="nofollow">arthritis </a>Clinnovohttps://www.blogger.com/profile/14264539697850783799noreply@blogger.comtag:blogger.com,1999:blog-4610416690314330157.post-9560499082855464442018-04-05T09:35:21.133-07:002018-04-05T09:35:21.133-07:00Be careful every time, the kids are always sensiti...Be careful every time, the kids are always sensitive. Care about them in any event. Always chose better clothing to wear. Nice information thanks.<br />Mehndi Dresseshttps://mehndidresses.pk/noreply@blogger.comtag:blogger.com,1999:blog-4610416690314330157.post-7499652902175001642017-11-26T08:08:40.101-08:002017-11-26T08:08:40.101-08:00Thank you so much for these information. I wanted ...Thank you so much for these information. I wanted to <a href="https://stem-cells-therapy.com/arthritis-treatment" rel="nofollow">start arthritis treatment</a> since I got to know that I am a arthritis patient after I got the diagnosed report. jaqulinhttps://www.blogger.com/profile/09855085722402484691noreply@blogger.comtag:blogger.com,1999:blog-4610416690314330157.post-4453951929300938342015-10-08T06:57:44.116-07:002015-10-08T06:57:44.116-07:00Hi, I have done some research this past time about...Hi, I have done some research this past time about rheumatoid arthritis and it's impact on people's lives. It breaks my heart to see people suffering of RA for some personal reasons and have decided to do some research on cures. We are taught by doctors that RA can not be cured, but Clint Padisson cured his RA with natural foods. <br /><br />I know it sounds impossible, but the medical profession also told us diabetes can not be cured.<br /><br />Please do see this page, I know it's mine I created for RA and JIA -I just wanna tell the whole world about it- but this is a proven cure for RA and even JRA. You can learn more about the program here <br /><br /><a href="http://www.spotonproductreviews.com/" rel="nofollow">Cure RA and JIA now</a><br /><br />I pray for pain-free days for everyone that suffers from RA or JIA, may God heal you and bless you.Anonymoushttps://www.blogger.com/profile/10701872799827520316noreply@blogger.comtag:blogger.com,1999:blog-4610416690314330157.post-20818684874516336992015-07-02T03:23:57.288-07:002015-07-02T03:23:57.288-07:00the Uveitis Treatment is multifold. Anti inflammat...the <a href="http://www.herbal-care-products.com/uveitis" rel="nofollow">Uveitis Treatment</a> is multifold. Anti inflammatory drugs such as corticosteroids are given in the form of pills injection or topical eye drops as per need. For treatment of posterior uveitis implantation of a device in the eye may be needed which slowly releases the drugs for up to two and a half years. Antibiotics or antiviral can be given if infection is suspected as the underlining cause.TERESA THORPEhttps://www.blogger.com/profile/01725362456819794432noreply@blogger.comtag:blogger.com,1999:blog-4610416690314330157.post-75348068476884811202014-01-22T05:44:01.481-08:002014-01-22T05:44:01.481-08:00Just found your blog. I have RA too that's no...Just found your blog. I have RA too that's not under control. Anyway, I'm wondering if your daughter can take zofran for nausea. It has been so wonderful for me and is safe enough for pregnant women too. I don't know why Drs don't consider it when we struggle with nausea. Maybe they don't believe the nausea is so bad. Anyway, just a thought. <br />Anonymoushttps://www.blogger.com/profile/14427332032069535941noreply@blogger.comtag:blogger.com,1999:blog-4610416690314330157.post-90876100563292143352013-07-19T14:06:10.514-07:002013-07-19T14:06:10.514-07:00Aawwww man. Is this what my wife and I will have t...Aawwww man. Is this what my wife and I will have to face as we begin the weekly injections on our 2 1/2 yr old girl? I'm already ticked off at the world and we haven't even gotten the syringes in our hands yet. sigh..poor kid. Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-4610416690314330157.post-28767688875839337042013-07-19T13:45:11.655-07:002013-07-19T13:45:11.655-07:00It's eerie for me to read this blog entry abou...It's eerie for me to read this blog entry about Jenna. Our 2 1/2 yr-old daughter Holly has just been diagnosed with JIA... ANA+ She has been put on the weekly Methotrexate injections and twice daily Naproxen too. Holly differs from Jenna in that so far, she has suffered no side-effects to the Naproxen. Dunno about the Methotrexate. Will be reviewing your blog to help understand what we face. Thank you for doing this.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-4610416690314330157.post-13462509945948943712013-05-18T20:42:13.018-07:002013-05-18T20:42:13.018-07:00I am so sorry, A. I remember a long time ago thin...I am so sorry, A. I remember a long time ago thinking, "my daughter will never flare". It was always a shock when she did, but we had never started weaning. She must be so crushed, too. :( I hope that this flare passes quickly and you can start weaning again. Love and prayers to you all!<br /><br />P.S.- LOVE that Plumb song! We got it on iTunes when it first got air play. Emily loves it the most, I think!Amadayhttps://www.blogger.com/profile/07951303205524536934noreply@blogger.comtag:blogger.com,1999:blog-4610416690314330157.post-63478759000768368262013-03-25T16:51:39.758-07:002013-03-25T16:51:39.758-07:00I ran across your blog from a post I saw on Pinter...I ran across your blog from a post I saw on Pinterest. My mother was diagnosed at 3 with Juvenile Rheumatoid Arthritis and I just thought I'd share and possibly give you some hope. The meds are WAY better now than when even I was a kid. the Nelsonshttps://www.blogger.com/profile/14624661874375066692noreply@blogger.comtag:blogger.com,1999:blog-4610416690314330157.post-24541027313340816002013-01-16T15:01:50.040-08:002013-01-16T15:01:50.040-08:00Awww I miss Jenna I was there when she would ride ...Awww I miss Jenna I was there when she would ride :) she does so well with bob :)Anonymoushttps://www.blogger.com/profile/11906697912410783711noreply@blogger.comtag:blogger.com,1999:blog-4610416690314330157.post-26364656055342247062012-10-25T19:38:56.060-07:002012-10-25T19:38:56.060-07:00Just found your blog. Perfectly stated! Exactly ho...Just found your blog. Perfectly stated! Exactly how I feel!Jennynoreply@blogger.comtag:blogger.com,1999:blog-4610416690314330157.post-49624458404998455382012-10-14T09:32:38.415-07:002012-10-14T09:32:38.415-07:00So nice to see people raising awareness of arthrit...So nice to see people raising awareness of arthritis in the young. I have just started a blog to document my experience with arthritis as a young person, please check it out :) http://porcelaindoll-xo.blogspot.co.uk Anonymoushttps://www.blogger.com/profile/06148529151560661632noreply@blogger.comtag:blogger.com,1999:blog-4610416690314330157.post-44140003091637868062012-07-02T21:48:44.610-07:002012-07-02T21:48:44.610-07:00Hello, just came across your blog....love it! My ...Hello, just came across your blog....love it! My daughter was just asked to be the Honoree for our walk here in San Diego! We are so excited!Pattiehttp://alexarthritis.blogspot.comnoreply@blogger.comtag:blogger.com,1999:blog-4610416690314330157.post-74852123590028767592012-05-29T06:46:57.304-07:002012-05-29T06:46:57.304-07:00I am so sorry Jenna is dealing with so much. As fa...I am so sorry Jenna is dealing with so much. As far as sensory goes there is hope but it's a long road. my 10 year old neice has severe sensory issues. She can't wear jeans because they "itch", socks have to be inside out because the seams in the toes bother her, strong smelling foods would send her through the roof. It's a horrible way to live but with proper OT she can be desensitized (to a certain extent). Learning to deal with her episodes is probably the hardest thing, you have to keep telling yourself that it's not her fault. My niece still has issues with her clothes and over stimulation when there are a lot of people and noise around but it's 100 times better than it was when she was younger. <br /><br />I've been following your blog since my 14 month old was diagnosed with systemic JIA at 9 months old. You are a wonderful mother and you and Jenna are in my prayers.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-4610416690314330157.post-84753392979467422012-04-11T06:52:23.671-07:002012-04-11T06:52:23.671-07:00It has to be heartbreaking making those decisions....It has to be heartbreaking making those decisions. Honestly though, I think you are doing the right thing now by letting her decide. If you think about it, the pain mentally has got to hurt her more than the pain physically. If she feels held back as a child with her friends, she is going to be so down on herself. As time goes on, she will find the right balance of what she can and can't do comfortably. It's so hard to let your babies make their own decisions sometimes, but it's like all other things. You learn from the choices you make. :) Good luck!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-4610416690314330157.post-10118369223451729922012-04-02T14:52:33.844-07:002012-04-02T14:52:33.844-07:00Thank you so much for understanding ladies!! Danie...Thank you so much for understanding ladies!! Danielle I did not know that about Emily. It's funny you say "all these years I thought I knew her so well" because *I* haven't felt that way. So in a way, this is a relief. Does that make sense? There has always been a wall, that even I as her Mother could not penetrate. I thought that I was failing her.Oh, I just now remembered that I was supposed to call OT today.....well...maybe I am failing! LOL!Amy Cunninghamhttps://www.blogger.com/profile/03415639964305589674noreply@blogger.comtag:blogger.com,1999:blog-4610416690314330157.post-83239747953340375282012-03-27T08:24:04.065-07:002012-03-27T08:24:04.065-07:00This is exactly how I felt when Emily was diagnose...This is exactly how I felt when Emily was diagnosed with Pervasive Development Disorder a few years back. I agree completely with what your friend said- it doesn't change who she is. I'm sad that she is so sad so much of the time. That just isn't fair :( But this time I feel more for you because I know how it feels to hear that. As a kid you hear it but it's meaningless. As a parent you hear it and it knocks the wind out of you. It made me think "all of these years I thought that I knew her so well, but now I find that I didn't see the biggest puzzle piece of all". That really disturbed me, shook me hard. BUT it's not our fault. How could we have known? We couldn't. I resolved to just go from that moment. You are amazing to me! I feel like we don't get to "chat" nearly as much as we used to (and I miss you!) but you are a phenomenal mother, and the perfect mother for Jenna. She was made just for you, and I have the utmost faith that He knew what He was doing when he gave her to you. Take care, ok? This too shall pass...Amadayhttps://www.blogger.com/profile/07951303205524536934noreply@blogger.comtag:blogger.com,1999:blog-4610416690314330157.post-47371135070989701992012-03-27T01:56:40.599-07:002012-03-27T01:56:40.599-07:00I often compare my ra to traveling through many di...I often compare my ra to traveling through many different types of storms. One day it may be a rain storm in which I need to pull out an umbrella. Another it may be a snow storm in which I need to employ a snow blower (never a shovel with my ra...lol). Another it may be I have a hurricane headed my way, in which case i need to exit stage left for awhile or harbor safely inside. My point is, you are helping her to find the tools she needs to weather this storm. You are a terrific Mom! Have faith that all of this will work out for you and your family.abcsofrahttp://abcsofra.blogspot.comnoreply@blogger.comtag:blogger.com,1999:blog-4610416690314330157.post-53734102432192869232012-03-06T11:12:34.319-08:002012-03-06T11:12:34.319-08:00I just wanted to cry reading this post. Can they s...I just wanted to cry reading this post. Can they skype maybe via the computers? JRA is difficult enough without having to leave a loved one behind. Maybe her older sister can visit with you guys for the summer? At least then they could play catch up and maybe figure out a way to stay in touch daily...texting and such or like I already said skype. My heart just got heavier for her. Give her lots of extra hugs from all those out here in cyberspace keeping the faith that this will all work out.abcsofrahttp://abcsofra.blogspot.comnoreply@blogger.comtag:blogger.com,1999:blog-4610416690314330157.post-12908791050753354912012-03-05T13:15:15.450-08:002012-03-05T13:15:15.450-08:00Hi, I volunteer with IAAM (International Autoimmun...Hi, I volunteer with IAAM (International Autoimmune Arthritis Movement~formerly the Buckle-Me-Up Movement!). What we've be working on in February and March has been reaching out to people on our JA blogger list and asking if we can post them as a resource on the JA page. To start, could we have contact info from you to add to our blogger list for our records. And if you give us the info, then we will also post your blog as a resource for others on the JA page. Please email me at danalm_iaam@yahoo.com and let me know.<br />We also invite you to participate in World Autoimmune Arthritis Day on May 20th 2012!<br /><br />World Autoimmune Arthritis Day<br />events.r20.constantcontact.com<br /><br />Join us for a 47 hour, Global Online Virtual Convention aimed to bring global awareness while learning more about your disease and ways to manage it best!<br /><br />I know you have already made a poster, so pass on the invitation to as many people as possible. :D<br /><br />Thanks, Dana MDana Asmara Morningstar-Martonhttps://www.blogger.com/profile/11825644957086048495noreply@blogger.comtag:blogger.com,1999:blog-4610416690314330157.post-62914680653426332012012-02-25T11:21:11.492-08:002012-02-25T11:21:11.492-08:00Hi Amy I noticed my daughter had posted this link ...Hi Amy I noticed my daughter had posted this link to her facebook page With something that said something to the order of "this describes how I feel; so sad 100% true" so I had to read. It is very well written and exactly how I feel about the choices. Now Megan is 18 and she has to make the choices..drugs or walking? We were blessed that we never had to deal with the stress of the crying and begging. Megan was older when she was diagnosed. I hope and pray as Jenna gets older the actual process gets better. <br /><br />MaureenMaureen Jnoreply@blogger.comtag:blogger.com,1999:blog-4610416690314330157.post-83287014835902321292012-02-09T09:36:14.799-08:002012-02-09T09:36:14.799-08:00That is fantastic news! I hope her happiness and g...That is fantastic news! I hope her happiness and great health persists!!!<br /><br />I am Zane from South Africa a Uveitis sufferer for 11 years. I am 27 now and things seem to be getting better for the most part.<br /><br />I found your website and think its great. I am a graphic designer and the image with Jenna in black and white witht he psalm written on top is amazing!!!<br /><br />All the best to Jenna and your whole family!<br /><br />Zane FordZaenhttps://www.blogger.com/profile/04575086504984925089noreply@blogger.com