tag:blogger.com,1999:blog-4610416690314330157.post2502535980414786787..comments2023-10-29T05:48:33.771-07:00Comments on Jennas JIA & Uveitis: You learn to take the good WITH the bad....Amy Cunninghamhttp://www.blogger.com/profile/03415639964305589674noreply@blogger.comBlogger6125tag:blogger.com,1999:blog-4610416690314330157.post-53161134808455495952011-08-23T16:22:38.786-07:002011-08-23T16:22:38.786-07:00Just wanted to say thanks for the great blog! It ...Just wanted to say thanks for the great blog! It has helped to read about other children with arthritis. Just wondering if you have looked into diet to help your daughters arthritis? We have seen some definite changes. Here is a really good article about it.<br /><br />http://robbwolf.com/2011/08/22/emelias-story-she-is-my-walking-miracle/Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-4610416690314330157.post-21486972915802072532011-07-20T20:12:04.228-07:002011-07-20T20:12:04.228-07:00Thinking of you too Jess! Sorry things are not goi...Thinking of you too Jess! Sorry things are not going so well in your boat. :(<br />Danielle how long was Em's MRI that she wasn't sedated?? Poor girl. She handles so much.<br />YES! I was in that class! I think I came in late. I wish I had paid better attention. Jeannine tells me that the book "Kids Get Arthritis Too" has a whole jaw section. I plan on reading in there tomorrow. Or maybe tonight since I'm clearly not sleeping.<br />Love and hugs to y'all too. <3Amyhttps://www.blogger.com/profile/08473130109537158136noreply@blogger.comtag:blogger.com,1999:blog-4610416690314330157.post-67309691078222845062011-07-20T19:56:44.065-07:002011-07-20T19:56:44.065-07:00Ugh! Well, I'm very happy about the eyes, but...Ugh! Well, I'm very happy about the eyes, but I'm so sorry about the joints. I completely understand how you feel about changing the balance of meds. The MRI idea was very, very scary to Emily, too. I'm glad that she'll be sedated for it. I really wish they had done that for Emily, much as I don't like the idea of sedation. Were you in the jaw session with us? I can't remember. It was such an informative class, but I miss a good chunk of it so I couldn't tell you much. Heidi has had a LOT of jaw issues. You may want to talk to her. Rochelle has had some experience with jaw issues, too. Love ya, Amy! If you need anything, give a yell :)Amadayhttps://www.blogger.com/profile/07951303205524536934noreply@blogger.comtag:blogger.com,1999:blog-4610416690314330157.post-28454500633203594752011-07-20T17:33:32.995-07:002011-07-20T17:33:32.995-07:00Sorry about the ankle and jaw. :( But I am happy h...Sorry about the ankle and jaw. :( But I am happy her eyes are CLEAR! Yay!! :) Hope the MRI goes well - and shows good things! Thinking of you guys, hang in there. :) HUGS!<br /><br />JessicaJessicahttps://www.blogger.com/profile/16710940145342053767noreply@blogger.comtag:blogger.com,1999:blog-4610416690314330157.post-42533868810863788502011-07-20T16:52:32.202-07:002011-07-20T16:52:32.202-07:00Thank you Tammy!! I was planning on coming to you ...Thank you Tammy!! I was planning on coming to you for some wisdom. Jenna just may have some questions for Anna, I will let you know. :) Right now she just isn't happy about the MRI. I am so very thankful that her doctor understands her fear and is willing to , even suggested, sedating her. There is no way she would be able to do it otherwise.<br />Tomorrow is either a pool day or a library day. Either way, it will be restful. :)Amy Cunninghamhttps://www.blogger.com/profile/03415639964305589674noreply@blogger.comtag:blogger.com,1999:blog-4610416690314330157.post-5707320865831628332011-07-20T16:14:57.421-07:002011-07-20T16:14:57.421-07:00Amy, Anna has MRIs of her jaw SEVERAL times, and i...Amy, Anna has MRIs of her jaw SEVERAL times, and injections done twice. She hasn't been sedated for the MRIs (but she's older than Jenna, and she's a very calm teenager), but she was sedated for the first injection. If Jenna has ANY questions for Anna, I can relay them to her, and I know Anna will be very glad to answer them. I'm so glad you received such good news on the eyes, and I'm also glad to hear that Jenna sees a very caring and thorough pediatric rheumatologist. Many hugs to you! Hope you have a chance to relax and regroup tomorrow after such a long day today.Tammy Zhttps://www.blogger.com/profile/06075778945434782066noreply@blogger.com