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Totties Pretties on Etsy

Totties Pretties on Etsy
Tottie's Pretties are ribbon wrapped headbands adorned with flowers & gems or perfect boutique bows. Banding Girls Together to Find a Cure for Childhood Arthritis. Tottie's supports CARRA and the Arthritis Foundation.

Thursday, January 22, 2009

"There is no significant change."

This is what Dr. Berman said today about Jennas eyes. Not what I was hoping to hear. I really felt so good going into this appointment. He took longer looking today than normal. Not good. Then when he was done he didn't sau anything. Just started writing in her chart. Uh oh....not good. I knew it wasn't what he had expected to see. He said her left eye is still quiet but her right eye has trace amounts. I don't think those were there the last few times. We are still going to try tapering to everyother day and see him again in 3 weeks. Now I have my doubts. I have a feeling that in 3 weeks time the cells will have come back. I thought we had this monster beat. Just goes to show....never get to comfortable.

Wednesday, January 14, 2009

Follow Up With Dr. Daihke

Jenna had her 8 week follow up with her rheumatologist today. It went well. I guess. Not that I WANT her swollen and in pain BUT she has been having alot of it lately. Not today though. Today all her joints looked and felt GREAT! Good news yes but I wish that he could see what they look like on other days. It's weird how it comes and goes. He said that she is doing well in his opinion if she can still have days like this. Even if it means bad days too. Yeah I guess. I just would prefer NO bad days. But I'm her Mommy. Of course I would want that :o).So for now we are staying the course with .6 MTX 1x weekly and Ibuprofen 2-3x daily. She goes back in 8 weeks for another follow up with him. Oh yeah....and it was time for her labs so we figured we may as well kill two birds and do it while we were there. Geez that kid is STRONG. Takes three adults to pin her teeny body down. And that kid can SCREEEEAAAAM! My ears are still ringing. Thanks for reading. Stay tuned for the next update January 22cnd after her follow up with Dr. Berman ;o).

Thursday, January 8, 2009

Follow Up Appointment with Dr. Berman

Jenna had her follow up with Dr. Berman today. I was SO nervous. I didn't like the idea of sedating her. Turns out she's a RIOT when doped up! The oral versed worked well enough that they were able to do the exam without completey knocking her out. Her pressures are normal. YAY! Vision is fine. YAY! Right eye "quiet", left eye "no active inflammation". YAY! So we now taper to drops once a day for the next two weeks. At that point hopefully every other day with a three week follow up. *sigh* I'm starting to see that bright light. Now back to the versed for a moment.....picture your funniest drunk friend. That was Jenna times about 100. She was so loopy it was hysterical. She couldn't sit up, her speech was slurred, her eyes were rolling and she wasn't making any sense. She goes to see Dr. Daihke on the 14th for a follow up. I am eager to see what he has to say. Jenna has been in a lot of pain lately. Check back next week for that. Ciao!